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Author
Topic: This... Sucks.
Azizza
VANDERSHANKED
posted 06-28-2003 06:07:08 PM
Well as a few of you know, Melissa has been kinda sick since Early May. She has been in the ER about 4 times and had every test you can imagine run.
Basicly she has been having bad spells where she will pass out, she is always weak and even minimal excersize or strain will exhaust her badly. Carrying a load of laundry less than 50 yards makes her so tired that she needs to rest for 10 minutes or so.

The doctors are stumped. They have tested everything from her thyroids to Diabetes. Everything has come back fine.

Apperently the doctor told her the other day that unless we can pinpoint this and treat it that we will never be able to have children. She would probably be dead by the 6th month the way her body is acting. I really don't know what to say or how to react. Or even why I am posting this. I just needed to get it out I guess.

Sorry.

"Pacifism is a privilege of the protected"
Trillee
I <3 My Deviant
posted 06-28-2003 06:11:28 PM
ACK!

Have they tested for blood sugar? That's absolutly horrible hun *hugs* =(

Azizza
VANDERSHANKED
posted 06-28-2003 06:13:44 PM
Yeah bloodsugar was one of the fist set of tests they ran.

I try to keep my hopes up around her. Always strong. Telling her not to worry. But sometimes I have to go off by myself so I can have a breakdown..

Right now she is resting. I had to help me the 20 feet to get to bed.

Honestly. I am scared to death about this.

"Pacifism is a privilege of the protected"
Nicole
The hip-hop-happiest bunny in all of marshmallow woods
posted 06-28-2003 06:14:15 PM
Jesus.

Don't apologise for this type of thing. If you need to get it out, by all means rant 'til you're empty. I'm sorry to hear this...



I just spent
my last cent
purchasing this poverty.

Grendel
Pancake
posted 06-28-2003 06:15:40 PM
That's Horrible.
Trillee
I <3 My Deviant
posted 06-28-2003 06:21:13 PM
quote:
Azizza had this to say about (_|_):
Yeah bloodsugar was one of the fist set of tests they ran.

I try to keep my hopes up around her. Always strong. Telling her not to worry. But sometimes I have to go off by myself so I can have a breakdown..

Right now she is resting. I had to help me the 20 feet to get to bed.

Honestly. I am scared to death about this.


Oh hun... just so many possibilities... =\ I'm sorry, All I can say is that I hope they find out quickly...

Razor
posted 06-28-2003 06:29:55 PM
*ponders* Sounds like blood flow problem...

I was getting that way for a while, but turned around.

*Hugs Azizza* Dude, breakdown if you want.

Astronomy is a passion...
Engineering is a love...
My job isn't a job, it's my career, and I love every minute of it: Observatory Superintendent
Bummey the Fool
Prefers to play with men
posted 06-28-2003 06:31:47 PM
A very good friend (the best )of mine died of cancer back in 9th grade =( I know horrible it is to live in fear like this, wondering what the next day will be like =( Only thing I can say is is that I hope you don't have to suffer with the loss that I did, and that I hope everything turns o ut well for you.
Suddar
posted 06-28-2003 06:34:07 PM
Will she be alright so long as she doesn't try to have a child? It doesn't sound like she's doing too hot either way.
Azizza
VANDERSHANKED
posted 06-28-2003 06:38:00 PM
Suddar the problem is that we just don't know. SOme days she seems fine. Then the next she is so weak I have to help her get out of bed.
"Pacifism is a privilege of the protected"
Suddar
posted 06-28-2003 06:39:47 PM
Is she weak on cloudy days? Maybe she's solar powered!

Yeah, that wasn't funny.

Grendel
Pancake
posted 06-28-2003 06:57:34 PM
When I was around 11 years old I had a lot of internal bleeding; I produced to much stomach acid and it ate away at my throat when I slept. Anyways the massive amount of blood I lost made me very weak. I was always very tired, I didn't want to eat - I felt to weak to even want to chew, I was pale, not pale like I am now or even Delid pale - See through pale. My hemoglobin was extremely low (can't remeber exactly how low). The doctors put me on Iron pills amongst man other types of pills.

The doctors would probably have checked for something like that but it wouldn't hurt if she tried taking iron pills.

Trent
Smurfberry Moneyshot
posted 06-28-2003 07:23:34 PM
I would hope they checked for heart problems.
Cheese
Pancake
posted 06-28-2003 07:42:43 PM
I have scleroderma and myositis and that sounds like me. Have they checked her for any auto-immune diseases?
**~*Pink Sugar Heart Attack!*~**
Lyinar Ka`Bael
Are you looking at my pine tree again?
posted 06-28-2003 07:58:15 PM
*hugs Az*

If you need to talk anytime, I'm here.


Lyinar Ka`Bael, Piney Fresh Druidess - Luclin

Azizza
VANDERSHANKED
posted 06-28-2003 09:52:24 PM
Thanks Lyinar. I may take you up on that. She is doing better right now. We are watching a movie. Earlier I thought I was gonna have to take her to the ER again though.

Life should not be so cruel to someone as wonderful as she.

"Pacifism is a privilege of the protected"
Mog
not really a mmembe rof tis boered
posted 06-28-2003 10:39:55 PM
=( ive made posts for problems nowhere near as bad as thismany tiems, az, feel rree to post as much as you want, noone (excpet lady D and redmage) was ever lynched for letting it all out, and soemtiems ju realy jstu need to


=( i realy hope she gets better, if i was a praying man she would definaltly be in them

*realy sucska tp osts liektheise^_^*


Regret calamities if you can thereby help the sufferer; if not, attend to your own work and allready the evil begins to be repaired
- Self Rreliance
Pvednes
Lynched
posted 06-29-2003 01:03:31 AM
*frowns*

Don't apologise about this, let it out as much as you need, as Nicole said..

I'm sure they'll find what's wrong..

KaLourin
Illanae's Stooge!
posted 06-29-2003 01:13:36 AM
bloodflow seems like it could be the source of the problem... a friend of the family had a 6 inch long "clot" hovering around in the arteries near her heart.Possibility was there that the clot could break loose and travel into the heart and get lodged in one of the valves if she did anything.. even walking up a flight of stairs.
Dont make me slap you so hard your bucket spins around, and around,and stops sideways,thus confusing you, and making you run about London wearing your bucket, a g-string, and carrying a stick,smacking the ground while yelling "MAGICALLY DELICIOUS! MAGICALLY FUCKING DELICIOUS!"- {Tal} to Mortious
Hebrew 9:3- 'And the Lord said unto me, "Dude, there isn't a K in covenant."' - Snoota

This beer drops trou and fucks your mouth with pure hoppy goodness. - Karnaj
Callalron
Hires people with hooks
posted 06-29-2003 01:56:43 AM
Have they thought about Epstein-Barr or Chronic Fatigue Syndrome? That kinda sounds like what's going on with her.
Callalron
"When mankind finally discovers the center of the universe, a lot of people are going to be upset that it isn't them."
"If you give a man a fish he'll eat for a day. If you teach a man to fish he'll just go out and buy an ugly hat. But if you talk to a starving man about fish, then you've become a consultant."--Dogbert
Arvek, 41 Bounty Hunter
Vrook Lamar server
Nicole
The hip-hop-happiest bunny in all of marshmallow woods
posted 06-29-2003 02:33:26 AM
It's... it's...

Hemogoblins!

That probably wasn't funny. Sorry. It's been bugging me and I had to say it. Sorry .



I just spent
my last cent
purchasing this poverty.

Lyinar Ka`Bael
Are you looking at my pine tree again?
posted 06-29-2003 02:36:22 AM
You can have my phone number if you need to hear someone's voice, hon. It's terrible worrying about health problems with someone you care greatly for.


Lyinar Ka`Bael, Piney Fresh Druidess - Luclin

Azizza
VANDERSHANKED
posted 06-29-2003 10:10:30 AM
They did a Tilt table test last week on her which check Blood pressure and I believe general flow. However I am keeping track of everything you all mention in the hopes that it is soemthing we canb check.
"Pacifism is a privilege of the protected"
BeauChan
Objects in sigpic may be hammier than they appear
posted 06-30-2003 06:46:38 AM
Endured by EC for over 7 years and counting...
Azizza
VANDERSHANKED
posted 06-30-2003 09:17:21 AM
Thanks everyone. This weekend was just really stressful. Saturday we went out to get her new glasses. It was a warm day and she was fine while we were in the Doctors office. However when we wnet outside all strength just left her body. The moment the heat hit us She started to slup to the ground and I had to catch her. We got home and she took a long nap. That is when I wrote the initial post. Sunday was a little better. I moved my old fish tank to her apartment for her and that cheered her up a lot. She did pretty well all day and only had to lay down for a few minutes in the early afternoon.

It seems to get worse leading up to and durring her period. In fact every time she has been in the ER has been right before or right after she starts. That is at least something. We know when it is at it's worst so we can use that as a base to go by. The next test they will run is an MRI and then they are going to test her for Multiple Scyrosis(sp?).

SO far they have tested for Low Bloodsugar, Diabetes, pretty much anything bloodsugar related. They have checked her heart, her BP, her lungs, and even ran an EEG to see if it could be nerological. As far as they can tell she is in perfect health.

She broke down craying last night about it, and it took everything I had to not do the same.

"Pacifism is a privilege of the protected"
Blindy
Roll for initiative, Monkey Boy!
posted 06-30-2003 09:20:37 AM
My little sister has a problem like this. She has fainting spells, puking spells, and hot flashes during her period.
It's some kind of disorder, they gave her some medicine she has to take starting four days before her period, and that does wonders for her. they also put her on the pill to keep her regular, so she doesn't mis-calculate the day to start.

[ 06-30-2003: Message edited by: Sergeant Blindy ]

On a plane ride, the more it shakes,
The more I have to let go.
Azizza
VANDERSHANKED
posted 06-30-2003 09:54:46 AM
I have wondered about the pill for melissa, to at least regulate her cycle. She was planning on starting it soon anyway but we decided not to till we knew more about what is wrong. Same with the Avlimil she was going to try.
"Pacifism is a privilege of the protected"
Katrinity
Cookie Goddess!
posted 06-30-2003 10:09:49 AM
<hugs Az and hands him and Melissa some cookies> Hope ya'll discover what the problem is
Cookie Goddess Supreme
Furry Kitsune of Power!
Pouncer of the 12th degree!
"Cxularath ftombn gonoragh pv'iornw hqxoxon targh!"
Translated: "Sell your soul for a cookie?"
Gydyon
Yes, I am a lawyer. No you can't sue them for that. Shut up, or I'll have your legs broken.
posted 06-30-2003 10:19:36 AM
Did they do an anemia check?
Gydyon
Evercrest Lawyer

Thinking about your posts
(and billing you for it) since 2001

Azizza
VANDERSHANKED
posted 06-30-2003 10:23:06 AM
quote:
Gydfather wrote this then went back to looking for porn:
Did they do an anemia check?

Yeah Gyd. That was one of the very first tests they ran. In fact I think it was the very first one.

quote:
Katrinity stopped staring at Deedlit long enough to write:
<hugs Az and hands him and Melissa some cookies> Hope ya'll discover what the problem is

She has been showered with Oreos Trust me I am treating her like a queen. I like doing that anyway. but I am especially careful right now.

[ 06-30-2003: Message edited by: Azizza ]

"Pacifism is a privilege of the protected"
Ares
posted 06-30-2003 11:13:11 AM
Has she been tested for Lupus? It doesn't sound like the symptoms of it, but Lupus can effect different areas of your body.
Ryuujin
posted 06-30-2003 01:06:26 PM
Check for Mono?
Azizza
VANDERSHANKED
posted 06-30-2003 01:24:57 PM
I am in good health. If she had something like that I would as well.

At one point she wanted me tested for STDs (I was tested less than a year ago)
I pointed out to her that if I had something I would be sick as well.

"Pacifism is a privilege of the protected"
Caela
Crazed Ex-Angel
posted 06-30-2003 05:33:14 PM
quote:
Azizza stopped staring at Deedlit long enough to write:
...... if I had something I would be sick as well.


Not necissarily. Hate to say it, but lots of people have stuff and never even know they're sick until a test shows it.

"I am free, no matter what rules surround me. If I find them tolerable, I tolerate them; if I find them too obnoxious, I break them. I am free because I know that I alone am morally responsible for everything I do. " - the "Professor" - The Moon Is A Harsh Mistress
Cherveny
Papaya
posted 06-30-2003 10:40:19 PM
I'm sorry to hear about this az, but have a possibility.

Have they checked for Celiac Disease? As it's a relatively recently recognized, it's often not checked for. It can easily cause the symptoms you are describing.

If it is possibly Celiac disease, the best cure is to eat no glutens. Celiac disease is the inability of the small inenstines to break down gluten protiens. The problem is it is very hard to eat a non-gluten diet, as it is often not labeled on foodstuffs.

More info can be found at this place.

I know a bit about is it as my aunt has been struggling with it for years, and only just a month ago found a doctor that was able to make the correct diagnosis.

I hope they find out what is wrong soon.

Kaglaaz How'ler
Pancake
posted 07-01-2003 02:50:28 PM
quote:
Ares wrote this then went back to looking for porn:
Has she been tested for Lupus? It doesn't sound like the symptoms of it, but Lupus can effect different areas of your body.

This came to mind to me as well. But from what I've been reading I'm not sure if it would be Lupus or not.
http://www.mayoclinic.com/invoke.cfm?id=DS00115

Clicking on Signs and Symptoms

Not everyone with lupus experiences the same signs and symptoms of the disease. In fact, your own symptoms may vary from time to time. Still, there are some common signs and symptoms associated with the disease. They include:

Rash. A butterfly-shaped rash called a malar rash may appear across the bridge of your nose and cheeks. Or a scaly, disk-shaped rash called a discoid rash may appear on your face, neck or chest.

Sensitivity to sunlight. People with lupus often experience severe rashes or sunburns after minimal sun exposure.

Skin ulcers. Sores may appear on your tongue or inside your mouth or nose. These ulcers are usually painless.

Arthritis. You may experience joint pain, stiffness and swelling.

Serositis. Inflammation of the lining of some organs such as the heart and lungs can cause you to have painful breathing, shortness of breath or chest pain.

Kidney problems. You may have kidney problems such as inflammation. This can occur without any symptoms, or you may have leg swelling (edema) and high blood pressure.

Brain or spinal cord problems. You may experience headaches, seizures or mental problems.

Other signs and symptoms also may occur that are not specific to lupus. These include:

Fatigue. This symptom may be accompanied by dizziness, headaches or depression.

Fever. An unexplained fever may be an early sign of lupus.

Raynaud’s phenomenon. This is a condition in which your fingers, toes, nose and ears turn pale when exposed to cold temperatures.

Chest pain. This pain may be accompanied by coughing.

Swelling. You may have swollen glands or swelling in your legs or around your eyes.

Digestive problems. These problems may include loss of appetite, weight loss, nausea and diarrhea.

Unusual hair loss.

People with lupus may also experience depression or difficulty concentrating, either because of the disease or as a reaction to living with a chronic disease.
.
www.mayoclinic.com has been my best source of info for anything and everything. Good luck and my prayers are with you and her.

http://www.bloodfin.net
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