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Topic: happy and sad at the same time..
Nae
Fun with Chocolate
posted 07-09-2002 09:20:09 PM
I have been experiencing migraines and seizures for over 20 years. I have been told everything from "you are just stressing out" to, "you are faking it" to, "it's some seizure disorder but we can't place a finger on it".

Today I got my tesst results back from an EEG I had done on base.

The doctor says that I have Epilepsy for sure. What a relief to me that I am not truly a hypochondriac! tcha

It pisses me off to no end that my parents thought that I was faking seizures.

How can you fake that?

Now.. the scary part is that the doctor thinks that there is a possibility that I might have a brain tumor as well. Because of the abnormal EEG, there were certain indications of possible lesions. Add to that my history of melanoma, which is highly malignant and spreads through the bloodstream easily, and I guess it means I have a high risk. So now I have to have an MRI and they did a whole slew of bloodtests on me. The CT scan was negative, and the spinal tap was negative too, so that is good.

Now I am on meds for migraines and epilepsy. I need to do a lot of research too, I know nothing about this.

tcha again

/kick to the head all those jerks over the years that didn't follow through and find out what was wrong with me. The Neurologist today told me that dizzy/fainting spells in children = erarly warning signs of epilepsy. I have been fainting since I was in 4th grade. Seizing since I was 13.

Vindication = MINE!

Mightion Defensor
posted 07-09-2002 09:22:14 PM
Well, at least you don't have a brain tumor; that's gotta be a relief.

* thinks of his sister's daughter Sydney

* celebratory tacklehug

Falaanla Marr
I AM HOT CHIX
posted 07-09-2002 09:22:18 PM
Wow, Nae. At least now they know what it is and can treat it
Bajah
Thooooooor
posted 07-09-2002 09:24:40 PM
*huglifts Nae outta luv* and support!*

Glad to hear you got some confirmation finally, but sad to hear it at the same time :/


* - Not to be confused with 'love' as that is reserved only for Suchii and if I misplaced that, she'd kill me! Kill me dead!

Maradon!
posted 07-09-2002 09:26:42 PM
Look at it this way: The devil you know is always better than the devil you don't.
Nae
Fun with Chocolate
posted 07-09-2002 09:29:26 PM
Well they don't know for sure if I have a brain tumor or not. That's why I have to have an MRI now. He thinks it's extremely possible so he wants to rule it out.

Something about the brain waves on the EEG indicate that as a possibility.

Thanks for the hugs.

I am happy that I have Epilepsy because they can medicate and control that.

Maradon!
posted 07-09-2002 09:33:38 PM
YAES!

You'll be OK 'Nae. Doctors can do some crazy shit these days.

I mean, they can take the HEART out of a DEAD PERSON...and put it INTO A LIVE PERSON...and they'll be OK!!! I mean, just think about that for a second!! It's ENSAEN!

And besides, the funny brains scans are probably just part of an old G.I. Joe or something.

Mr. Wilams
Pancake
posted 07-09-2002 09:38:02 PM
Wow. Really hope you're okay. A brain tumor would suck a whole lot.
Mr. Wilams
Pancake
posted 07-09-2002 09:40:35 PM
But I'm with Maradon. Doctors can do some crazy ass voodoo these days, and most cancers are completely survivable if you keep up to date medically.

But I hope you're okay still.

JooJooFlop
Hungry Hungry Hippo
posted 07-09-2002 09:44:55 PM
You could have given yourself epilepsy with your negative thinking.
I don't know how to be sexy. If I catch a girl looking at me and our eyes lock, I panic and open mine wider. Then I lick my lips and rub my genitals. And mouth the words "You're dead."
Ja'Deth Issar Ka'bael
I posted in a title changing thread.
posted 07-09-2002 09:58:56 PM
quote:
Maradön² probably says this to all the girls:
YAES!

You'll be OK 'Nae. Doctors can do some crazy shit these days.

I mean, they can take the HEART out of a DEAD PERSON...and put it INTO A LIVE PERSON...and they'll be OK!!! I mean, just think about that for a second!! It's ENSAEN!


THEY ALL CALLED ME INSANE! OR MAD! but you see i just get these headaches, and...

oh...er...yes. Jolly good, Nae. If you're lucky, there's nothing there. If you're kinda lucky, it's something there that gives you strange new psychic powers. If you're unlucky, well, we have all sorts of fun ways to get rid of trouble these days, but we might shave your head like Delidgamond just to be sure.

No kissing yourself.

In any case I'm sure it's fine.

Lyinar's sweetie and don't you forget it!*
"All those moments will be lost in time, like tears in rain. Time to die. -Roy Batty
*Also Lyinar's attack panda

sigpic courtesy of This Guy, original modified by me

Tristan
Vidi, vici, veni.
Nae's Stooge
posted 07-09-2002 10:02:46 PM
Ok, all you people going to Naes on Sat, you are hereby orderd to cheer her up, and make sure it lasts until the second wave arives in Aug!
Veni, vidi, vici
Palador ChibiDragon
Dismembered
posted 07-09-2002 10:25:02 PM
It's good to hear that there's progress for you. My mom has Fibromaliga (sp?), and had to deal with some people and doctors telling her that it was all in her head. (They can't test for it, they find it by ruling everything else out.)

Don't forget to take your earrings out before the MRI. As I recall, some metals can heat up during those, and that would be kinda painful. (I'm sure the doctors would warn you to anyway, but still...)

And tell that doctor that we said "Thank you" for doing things right and helping someone we care about.

Good luck, and trust this doctor. He sounds like he really knows what he's doing.

I believe in the existance of magic, not because I have seen proof of its existance, but because I refuse to live in a world where it does not exist.
Nicole
The hip-hop-happiest bunny in all of marshmallow woods
posted 07-09-2002 10:35:01 PM
Woo and boo hoo.

Glad to see they figured out what's wrong. Sucks that there WAS something wrong, buuuut...

*huggles* If ya want truffles, tell me.



I just spent
my last cent
purchasing this poverty.

Lyinar Ka`Bael
Are you looking at my pine tree again?
posted 07-09-2002 10:59:17 PM
Glad you found out you have something that is treatable, Nae. And just remember that a brain tumor doesn't always have to be fatal. They're making great strides in medicine these days, so even if it does turn out to be what you think is the worst, don't lose hope.


Lyinar Ka`Bael, Piney Fresh Druidess - Luclin

Random Insanity Generator
Condom Ninja El Supremo
posted 07-09-2002 11:20:10 PM
Grand Mal or Petite Mal siezures?

I've got an aunt that goes through grands... Very scary to see when you're not expecting it.

Docs thought I might be having petite mal siezures a while back. Went in for some blood work and just zoned out for a couple of minutes while the doc was talking... He asked me a few questions about it (did it happen often, what parts of his questions did I hear, etc, etc) and said that I should get checked for it. Never really thought about it again. Every so often I just stop moving and don't react to anything going on around me... I really should make an appointment to get a checkup on that...

* NullDevice kicks the server. "Floggings will continue until processing power improves!"
-----------------------------------
"That was black magic, and it was easy to use. Easy and fun. Like Legos." -- Harry Dresden
-----------------------------------
That's what playing Ragnarok Online taught me: There's no problem in the universe that can't be resolved by the proper application of daggers to faces.
Ozimander
$$$$$$$$$$$
posted 07-09-2002 11:28:23 PM
Glad to know your going to be okay Nae. Best of luck to you and as some people said, doctors can do fucking crazy things no adays.

Like kill an ox from 40 yards away...WITH MIND BULLETS! (That's from Wonder Boy by Tencaious D, not trying to mock you or anything)

Best of luck to ya!

*gives Nae a tentacled hug*

Cthulhu

[ 07-09-2002: Message edited by: Cthulhu ]

tyme hacker
Pancake
posted 07-09-2002 11:31:57 PM
even though i'm new here, i still give you my support as much as one can. i myself have a lovely disease, no one knows what causes it...and i may end up with cancer because of it; so i feel for you.

i pray for your well-being.

i don't know UBB code. help me. i'm lost.
King Parcelan
Chicken of the Sea
posted 07-09-2002 11:39:01 PM
Alleria Qui'farush
Chica!
posted 07-09-2002 11:42:36 PM
My cousin is my age and he had a brain tumor 3-5 years ago, and it wasn't fatal. Glad there are good doctors and treatments these days.

Then my uncle had a brain tumor and it was treated for years! The tumor was the size of a baseball and he eventually died. ~_~ I don't think he had good doctors or treatments.

ArchAngel
Not a girl, never will be, no matter how much you may hear differently
posted 07-10-2002 12:04:19 AM
Bribes the doctors to use the secret technology the military's been holding back to make Nae all better.

It's good that you know what you have but... I really hope you don't have a brain tumor...

"What power would hell have if those imprisoned there could not dream of heaven?" -Dream, Sandman
"When the first living thing existed, I was there waiting. When the last living thing dies, my job will be finished. I'll put the chairs on the tables, turn out the lights, and lock the universe behind me as I leave." -Death, Sandman
"Things need not have happened to be true. Tales and dreams are the shadow truths that will endure when mere facts are dust and ashes, and forgot." Dream, Sandman
Full sigpic image
Azizza
VANDERSHANKED
posted 07-10-2002 12:30:57 AM
What type od Seizures do you have Nae?
When I was a child I had Pretty bad epilepsy. My Seizures only hit and night. My face would shake badly and my body to a much lesser extent. I would also be paralyzed for a short time.
I have not had a seizure in years however I still sometimes wake up unable to move and I get migrains at times.

I would like to hear more Details about your case. If you dont' want to post it please PM me.

"Pacifism is a privilege of the protected"
Trent
Smurfberry Moneyshot
posted 07-10-2002 12:34:46 AM
*hugs Nae*
Nae
Fun with Chocolate
posted 07-10-2002 12:36:19 AM
You all make me smile. 'Deth especially.

The Nae flexes her Super Powers!

I was kinda afraid to post about it here because I didn't wanna do a "poor me" thread. But I really needed some hugs. I feel like laughing and crying at the same time.

Like when they found my melanoma, I was in shock. Then I had to wait 2 weeks for an appt to the Dermatologist to remove it.. then 2 more weeks to find out the results.

The waiting is the hard part because all the bad things go through your mind. "What if it is?" Then when you are told "Yeah it's Cancer", you are like.. "uh uh uuuh". How are you supposed to react?

I am lucky to have Ryan and Josh though.. they keep me happy and make me smile.

Random Insanity Generator
Condom Ninja El Supremo
posted 07-10-2002 12:39:03 AM
quote:
Ja'Deth Issar Ka'bael's fortune cookie read:
No kissing yourself.

I think there are people here who would pay to see that.

* NullDevice kicks the server. "Floggings will continue until processing power improves!"
-----------------------------------
"That was black magic, and it was easy to use. Easy and fun. Like Legos." -- Harry Dresden
-----------------------------------
That's what playing Ragnarok Online taught me: There's no problem in the universe that can't be resolved by the proper application of daggers to faces.
Nae
Fun with Chocolate
posted 07-10-2002 12:40:36 AM
Um.. my seizures are always different. Sometimes I just faint. Sometimes I faint and then convulse all over the place. Full-body. Sometimes it's just one side of my body.. it's hard to say.

Always, they follow a migraine.

Afterwards I sleep for a long time and I hurt all over. Sometimes I feel like I am actually out-of-body and watching. My body gets all minty feeling.. like hot and cold at the same time. I get an aura and see lights or sometimes a tunnel-vision thing.

UBT
Pancake
posted 07-10-2002 12:42:11 AM
I don't know really what to say. I'm in total shock of this, but at the same time I'm relieved at the fact that they found something. I'm scared to death of them finding anything but at the sametime I want them to find everything they can and fix it now. Pam's right, the waiting is the killer. The only silver lining I see in this dark cloud is that it might actually get me put back on main base to work on F-16's so that I can be closer to her when she needs me. It also might keep me from going to the 3rd level of Hell ( Jakobabad, Pakistan. )
Kloie
tunactsunamooon
posted 07-10-2002 12:44:21 AM
meep =\

*worries*

Palador ChibiDragon
Dismembered
posted 07-10-2002 12:59:52 AM
I have to agree about the waiting being the worst.

A while back a small lump showed up on/in the back of my left hand. With a family history of cancer, I started getting very worried to the point of making myself sick. Walking into that Doctor's office to have it looked at was one of the most terrifying moments of my life.

Still, for what it's worth, my hopes and wishes are with you.

I believe in the existance of magic, not because I have seen proof of its existance, but because I refuse to live in a world where it does not exist.
Lyinar Ka`Bael
Are you looking at my pine tree again?
posted 07-10-2002 01:06:52 AM
Just remember this, too. Cancer doesn't have to be something that is going to destroy your life. I had cancer, a type fatal 90% of the time when I was 4 years old. I survived.

Of course the best thing is for it to be nothing like that. But don't despair if it is.


Lyinar Ka`Bael, Piney Fresh Druidess - Luclin

Densetsu
NOT DRYSART
posted 07-10-2002 03:15:30 AM
Hope everything comes out alright, Nae.
I was in the Virgin Islands once. I met a girl, we ate lobster, drank piña coladas. At sunset, we made love like sea otters. That was a pretty good day. Why couldn't I get that day over, and over?
Pvednes
Lynched
posted 07-10-2002 03:39:35 AM
You'll be alright, Nae.

*hugs*

Ja'Deth Issar Ka'bael
I posted in a title changing thread.
posted 07-10-2002 05:08:06 AM
Yeah UBT, I can see what you mean. It's scary...but you gotta know. Not the same thing, but when Lyinar had her gall bladder out, I was mortified. Her Mom told me, and I was all worried, then she was okay. These days things are sooooooooo different from when we were kids. used to be if you had something that needed to be cut out, you had lots of vicious, invasive surgery. Now they make tiny incisions, use lasers, and little tiny cameras and vacuums. When I saw Lyinar's little cuts, I was amazed. They managed to save her with three little cuts.

Be harder if it is something related to the brain, but still...If worse comes to worst, you can expect pleasant surprises from medicine. When you were a kid, Nae, they couldn't find anything and thought it was you playing games. Now they have a clear view.

And if UBT can stick around you, added bonus.

Lyinar's sweetie and don't you forget it!*
"All those moments will be lost in time, like tears in rain. Time to die. -Roy Batty
*Also Lyinar's attack panda

sigpic courtesy of This Guy, original modified by me

MadCat the 2nd
Pancake
posted 07-10-2002 06:14:45 AM
[QUOTE]So quoth Ja'Deth Issar Ka'bael:
[QB]Yeah UBT, I can see what you mean. It's scary...but you gotta know. Not the same thing, but when Lyinar had her gall bladder out, I was mortified. Her Mom told me, and I was all worried, then she was okay. These days things are sooooooooo different from when we were kids. used to be if you had something that needed to be cut out, you had lots of vicious, invasive surgery. Now they make tiny incisions, use lasers, and little tiny cameras and vacuums. When I saw Lyinar's little cuts, I was amazed. They managed to save her with three little cuts.

[/QB][/QUOTE]

Yah, when I had mine out it was done in 2 days time. Go in on day 1. Get yourself knocked out cold, they make 3 incisions all less than an inch long. 1 for the camera, 2 for the tools. They chop a bit, and 6 hours later you wake up going "wtf, that was some trippy shit".

Day 2, you leave the hospital in the morning and go home to sleep a lot.

My mom works in a hospital and they can do some funky stuff these days.

*hugs the Nae@#$*

"Too often, we lose sight of life's simple pleasures. Remember, when someone annoys you it takes 42 muscles in your face to frown, but it only takes 4 muscles to extend your arm and bitch-slap that motherfucker upside the head."

ben(at)netmastering(dot)nl

LeMiere
posted 07-10-2002 06:17:31 AM
*hugs the Nae* I'm sowwy, Nae. I'll do my best to visit you this weekend, then. :]
Niklas
hay guys whats going on in this title?
posted 07-10-2002 06:29:21 AM
*hugs Nae*

That's good/bad news, I'm so happy/sad for you

Good luck, Nae

Comrade Snoota
Communist
Da, Tovarisch!
posted 07-10-2002 06:41:07 AM
My mom has Epilepsy. But she doesn't have the kind you have. She "blacks out" for a while and forgets what she's doing/where she is. It used to happen all the time because she would never take her medicine, but she does now. She hasn't had an "attack" in about four years.

It's scary when you're a kid. I remember when I was twelve or thirteen and she would walk into the room, look at me, and go, "Am I supposed to be doing something? Do I have to go to work today?" and just kind of stare off at the wall.

You smell that? Do you smell that? ...Napalm, son. Nothing else in the world smells like that. I love the smell of napalm in the morning. You know, one time we had a hill bombed for twelve hours. When it was all over I walked up. We didn't find one of 'em, not one stinkin' dink body. The smell, you know that gasoline smell, the whole hill. Smelled like... victory.
Nae
Fun with Chocolate
posted 07-10-2002 09:03:01 AM
quote:
Lyinar Ka`Bael had this to say about Optimus Prime:
Just remember this, too. Cancer doesn't have to be something that is going to destroy your life. I had cancer, a type fatal 90% of the time when I was 4 years old. I survived.

Of course the best thing is for it to be nothing like that. But don't despair if it is.


Yeah, it's amazing what they can do nowadays.

The thing that terrifies me though is things like my sister's mother in law. She went to the doctor not feeling "well" on a Tuesday. Gets put in the hospital for tests, gets told she has cancer the next day, is in a coma the following day, and dies 4 days later. They didn't catch it in time.

I pray that it is nothing. I pray that the headaches I have are nothing. I am gonna try to put it out of my mind totally, because if I don't.. I'll just go nuts with worry and Ryan doesn't need that. In time I'll know. I just need to keep my mind occupied for a few weeks.

`Doc
Cold in an Alley
posted 07-10-2002 10:52:31 AM
(*stops reading about half way down because it's giving him a migrane *)

I can't say much for tumors or anything like that (though I may end up getting it checked considering the way I go through tylenol), but I had an MRI recently, so I'll give you what advice I can think of.

[1] Take a combination lock with you. You'll have to lock your belongings in a locker, because you can't have anything metal on while you're in the machine. Unless Josh or UBT can go with you and guard your belongings for 1-2 hours, you'll need someplace safe to put any money, car keys, or jewelry you have with you... not to mention your clothes (see below).

[2] Take a sweatshirt and sweatpants. As already stated, you can't take metal in the machine. Now I can't say about your personal preferences, but I have no intention of getting stuck wearing a hospital gown unless absolutely necessary. Most pants have metal zippers, and a lot of other clothes have metal in them that you might not even think about.

[3] Bring your imagination. It's way too loud to listen to music, and you can't read a book if they're scanning your head. If you're claustrophobic, you're in trouble, because you're going to be held fairly still (they might have to strap your head & torso to the table) and shoved inside a cylindrical space with a roughly 3' diameter. They will probably have heavy-duty sound-blocker earmuffs for you. You can still hear fairly well through them though. I would suggest using a walkman with an earbud, but again, no metal allowed.

[4] That banging sound is normal. The machine is not about to collapse on you. Each time you hear a low-pitched thud (and you will hear them in sequences of about 15-30), it is taking a cross-section picture of your brain. This has been proven not harmful, and the system does not separate an actual cross-section of your brain in order to take the picture.

Base eight is just like base ten, really... if you're missing two fingers. - Tom Lehrer
There are people in this world who do not love their fellow human beings, and I hate people like that! - Tom Lehrer
I want to be a race car passenger; just a guy who bugs the driver. "Say man, can I turn on the radio? You should slow down. Why do we gotta keep going in circles? Can I put my feet out the window? Man, you really like Tide..." - Mitch Hedberg
Please keep your arms, legs, heads, tails, tentacles, pseudopods, wings, and/or other limb-like structures inside the ride at all times.
Please submit all questions, inquests, and/or inquiries, in triplicate, to the Department of Redundancy Department, Division for the Management of Division Management Divisions.

Nae
Fun with Chocolate
posted 07-10-2002 10:57:34 AM
I am not freaked out by the MRI, have had them done before.

I am just freaked out by the waiting.

All times are US/Eastern
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